Thursday, July 26, 2012
Email from Professor JM at King's:
As requested, I have spoken to Professor H today to ask her opinion regarding your prognosis.
She said that you could expect a normal or near normal lifespan provided you had no complications.
She also added that having the MPL gene mutation would not be expected to result in any different behaviour of your myelofibrosis, compared to other patients with a more common mutation or without a mutation.
What I had actually asked was how long I could expect to be able to continue with normal activities apart from travelling outside the EU, not what my lifespan was likely to be. But perhaps its best to leave this to be clarified at the next haematology appointment, less than three weeks ahead.